This group has created a website and discussion forum in the fields of chronic cerebrospinal venous insufficiency (CCSVI) and multiple sclerosis (MS).

The website is run by Canadian health researchers and funded by the Canadian Institutes of Health Research (CIHR).  It contains an 11-minute visual lecture that explains many of the key issues in Testing Treatments.  The concepts are explained in an accessible and compelling manner.
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People in Research connects researchers who want to involve members of the public with members of the public who want to get involved.

There is:

  • a library of videos explaining what it’s like to get involved in research
  • a database of current opportunities to get involved
  • researchers can register to add their own projects to the database
  • you can sign up to get email alerts of new opportunities that match your interests.

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The Center for Shared Decision Making is a US organization dedicated to encouraging doctors and patients to make decisions together.

Some healthcare decisions are easy. Others are not. Often, there is more than one choice, and each will have its own risks and benefits. The “right” choice depends on what is important to you. We can help.

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The Informed Medical Decisions Foundation (previously known as the Foundation for Informed Medical Decision Making) has been working for over two decades to advance evidence-based shared decision making through research, policy, clinical models and patient decision aids.

The website contains a large collection of tools and decision aids to support shared decision making across a broad range of clinical areas.  Both patients and professionals will find this site invaluable.
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The Cochrane Library

This web course has been designed to help individuals understand the fundamentals of evidence-based healthcare concepts and skills. The course is free, but you have to register. Okumaya devam edin »

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The Cochrane Consumer Network (CCNET) exists to support health care users, their parents and carers learn about evidence-based healthcare. It encourages consumers throughout the world to give their perspectives and help set priorities for health care.

The Network promotes the use of evidence-based healthcare to guide well-informed decisions about health care. CCNet offers Okumaya devam edin »

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The UKCRN helps to provide the infrastructure that allows high-quality clinical research to take place in the NHS, so that patients can benefit from new and better treatments, and we can learn how to improve NHS healthcare for the future.

On this site you can learn more about the Clinical Research Network, including:
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World Health Organization

This post contains links to several databases that list ongoing research in health care.  These databases are managed by respective national and international bodies.  You should note that the same trials may appear in more than one database. Okumaya devam edin »

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The US National Cancer Institute provides information about clinical trials that is useful to everyone, not just people who are interested in cancer.

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DUETs

DUETs publishes treatment uncertainties from patients, carers, clinicians, and from research recommendations, covering a wide variety of health problems.

Where do the uncertainties published in UK DUETs come from?

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